Increasing evidence points to postviral disease as the progenitor of ME/CFS. There are ideas about the kind of people prone to it, and the connection between psychological conditions and CNS. But it’s clear: ME/CFS is real, it’s biological, and it’s impacting more of us as this pandemic continues.
This is grim. 1 in 5 kids is living with a type of postviral condition that almost broke me when I got it at age 37. By the time most parents figure out what's going on, it will be worsened because rest and pacing are the opposite of children's normal day to day lives. Wear a mask in public (please)
the way some people talk to me about this - I have a friend who had a postviral neurological disorder with similar symptoms and she consistently assumed my condition was similar or probably the same but at her worst she was able to do far more than I can
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hint: as someone else with moderate MCAS I am desperately trying to keep from reaching "severe" who is aware a large amount of long COVID is postviral MCAS and who has followed the science closely for four years, I have done the actual , mathematical risk calculations
Treatments for postviral and infection-associated illnesses of all kinds will save lives. They’ll return capability and potential to the many, MANY disabled people who want to live our lives, have jobs, contribute in the sciences and arts and society in ways that we can’t while sick.