A friend found a home video of our senior class (PWHS 02) and now you can bask in the two moods of Drew. 🤣

My face wears a weathered map of the chronic illnesses determined to rip away my life one day at a time. I don’t know who I am anymore, and a hollow-eyed stranger screams at me from my reflection. 🌀 #POTS#Sepsis#TBI#DisabledinSTEM#pwHS#HidradenitisSuppurativa

On hold with doctor: "We are currently experiencing longer than normal wait times. Please hold for the next representative." Tell me, when exactly are you NOT experiencing absurdly long wait times?! 🤦🏻‍♀️ #ChronicIllness#DisabledInSTEM#TrigeminalNeuralgia#pwHS#HidradenitisSuppurativa#NEISvoid

Me: A person with MCAS/POTS trying to sleep - Downstairs neighbor’s dryer scents wafting into my window at 3 am. My Body: You are now on fire. Hives and fever time! 😔 #MCAS#POTS#DisabledinSTEM#ChronicIllness#Disability#NEISvoid#pwHS

Merry Christmas, my friends! Today may have been painful and exhausting, but know I’m here with you. My wish is that we each had one small thing in our day that made us remember how loved we are. You are loved. 🎄 #pwHS#DisabledInSTEM#MerryChristmas#Chronicillness#HappyHolidays#Love

Chronic illness community, Do you keep spreadsheets of your medications? I’m curious to see if it’s helped anyone else. I’ve used spreadsheets for years, and they help so much! #DisabledInSTEM#ChronicIllness#pwHS#Fibromyalgia#Asking#POTS#MCAS#Disability#Organization#Curious

#HIV Dazu sollte&wollte ich auch 1en Faden erstellen. Von der Rolle der Aktivist:innen, zum Swisstatement 2008 bis zu U=U &sogar dem späten "Nebensatz" der Who im 2016 dazu. Dass es PWHs erleichtern sollte, Zensur beenden & dass es, was so nie angedacht war, ein neues *divide ed impera* brachte.

NLnachochip.bsky.socialNov 17, 2023 7:49pm

WHY TF is it in the 80s! Heat is my enemy. I hate having no AC and a heart condition and all sorts of other heat-intolerant diseases. 🥵 #POTS #HeartDisease #Chemo #Chronicillness #heat #Goawaysummer #HidradenitisSuppurativa #23_L #pwHS

Updated to include: #mecfs, #cfs,#mcas, #pots, #eds\, #fibromyalgia, #LongCovid, #lupus, #fibro. MigraineChat, #NEISvoid, #dysautonomia|, #RA, #RheumatoidArthritis, #pwME, #pwLC, #ChronicIllness, #ms, #MultipleSclerosis, #gastroparesis, #cpp, #ChronicPain, #pwHS, #MEeps, #IBD, #crohns, 1/2

“And till my ghastly tale is told, This heart within me burns. ” — Samuel Taylor Coleridge #pwHS #DisabledinSTEM #NEISvoid #Chronicillness #quote #HidradenitisSuppurativa #Chemo #Crohns #POTS