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You will be forced to suffer in unimaginable ways as an attempt to āproveā you could get better if you wanted. Many ME patients slowly starve to death because they canāt eat/digest - yet are refused feeding tubes because doctors think āwhen theyāre hungry enough they will eatā /2
āWorse, when we donāt ignore them, we blame them, telling them that they are all free to rise from their beds and wheelchairs, to walk away from the city.ā This. We treat ME patients appallingly. Too often when doctors donāt understand something - itās āall in your headā /1
A personal viewpoint on #MECFS. This is focused not on #pwME rather on why we - society - forsake them. Please read ā¬ļø theconversation.com/ignored-blam...
The co-lead of the worldās largest ever genetic study into ME calls for a radical change in how society deals with the disease.
Now that this app is becoming more popular, there has unfortunately been an influx of right wing accounts I highly recommend subscribing to this blocklist if you want to avoid this type of content bsky.app/profile/did:...
Sitting here as usual - sick, struggling, in pain, a dozen different medical issues I have no care for, wondering what to do... I shouldn't have to choose between leaving my mom (to move to the US) and never having adequate medical care again. I hate it here. #BeautifulBC
Is it me or is BC becoming more like Alberta by the year? This place was so different 25 years ago, I think it might be time to admit that vision of BC is gone now. šš (wish there was a broken green heart emoji)
Woohoo! Dr David Kaufman andDr. Ilene Ruhoy have made their podcast available for free on YouTube! Thereās a huge wealth of knowledge and wisdom on complex chronic illness here. www.youtube.com/watch?v=LgFG...
YouTube video by Unraveled: Understanding Complex Illness
This was incredibly informative. Thereās a lot more going on here functionality-wise than I realised.